Rare genetic disease of 15-month-old baby, difficult to breathe, 17 crore injection needed to save life
Palakkad. An innocent child in Palakkad district of Kerala is suffering from a very rare disease. This 15-month-old child has such a disease in which his muscles have started to weaken. Now Rs 17.5 crore is needed for the treatment of the child. For this his parents are trying to raise money. Nirvaan, son of Sarang Menon and Aditi Nair, has spinal muscular atrophy (SMA). The engineer couple is now raising money for the son’s treatment for crowdfunding. According to a report in The News Minute, the treatment of SMA will cost around Rs 17.5 crore. A drug named Zolgensma is given once in this disease.
SMA A Rare genetic disease Is. In this, due to the decline in motor neurons, the muscles become weak. The disease also affects muscle function, including breathing, swallowing and locomotion. If not treated on time, it can also lead to permanent ventilation or death. To prevent the disease, its medicine is given only to children below the age of 2 years.
The family sought help from the Kerala government
On January 13, it was revealed that Nirvana is suffering from SMA. According to a report in The News Minute, Nirvana’s parents met Kerala Health Minister Veena George on January 25 and appealed to the government for help. According to media reports, the couple has raised Rs 3.10 crore till January 28 through online crowdfunding platforms Milap and Impact. Now the family is appealing to the people for help.
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Actress Ahana Krishna had also mentioned about the child’s illness and the need for funds for its treatment. He wrote in his post on social media that Nirvana is 1 year and 3 months old. We need Zolgensma by Novartis, one of the most expensive drugs in the world, before she is 2 years old. For the treatment of his spinal muscular atrophy (SMA type 2), Rs 17 crore is required to be raised. Take out 5 minutes of your time and help in every possible way.
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Tags: Genetic diseases, health, Kerala News
FIRST PUBLISHED : January 28, 2023, 17:06 IST